Symposium – Beyond the Horizon: The Changing Landscape of Rare Disease Treatments | PPMH - Program for Precision Medicine in Health Care

The 黑料网 and Program for Precision Medicine in Health Care (PPMH) are hosting a symposium on Friday February 28, 2025 from 2:00-5:00pm in MacNider 321.

Speakers will address:

Tentative agenda:

Time听	Presentation Length听	Speaker听	Topic听
2:00-2:05听	5 min听	Jonathan Berg, MD, PhD	Welcome听
2:05-2:15听	10 min听	Muge Calikoglu, MD, MPH	History of Rare Disease Therapeutics at 黑料网听
2:15-2:25听	10 min听	Sam Young, PhD	Current Rare Disease Therapeutics at 黑料网听
2:25-2:35听	10 min听	Matthew Hirsch, PhD	Current Rare Disease Therapeutics at 黑料网听
2:35-2:45听	10 min听	Yael Shiloh-Malawsky, MD	Current Rare Disease Therapeutics at 黑料网 (ForeBatten)听
2:45-2:55听	10 min听	Past & Current Q&A
2:55-3:05听	10 min听	Yael Shiloh-Malawsky, MD	Future of Rare Disease Therapeutics at 黑料网 (n-Lorem)听
3:05-3:15听	10 min听	Senyene Hunter, MD, PhD	Future of Rare Disease Therapeutics at 黑料网
3:15-3:25听	10 min听	Future Q&A
3:25-3:40听	15 min听	Coffee break听
3:40-3:50听	10 min听	Carlee Friar, BS	Family Experience听
3:50-4:00听	10 min听	Patricia Sullivan, MA	Family Experience听听
4:00-4:10听	10 min听	Eleanor Bolton听	Family Experience (SMA)听
4:10-4:20听	10 min听	Family Experience Q&A
4:20-4:30听	10 min听	Karen Hogan / Logan Blinman, MS	Engagement and Philanthropy – Family Advisory Council听
4:30-4:40听	10 min听	Mary Gard, MA	Engagement and Philanthropy 鈥� 黑料网 Health Foundation听
4:40-4:50听	10 min听	Engagement and Philanthropy Q&A
4:50-5:00听	10 min听	Jonathan Berg, MD, PhD & Muge Calikoglu, MD, MPH	Closing Remarks

The symposium will be open for in-person or virtual/Zoom attendance.
The closest visitor parking is at the Dogwood Parking Deck.