{"id":3686,"date":"2018-02-26T11:27:33","date_gmt":"2018-02-26T16:27:33","guid":{"rendered":"https:\/\/www.med.unc.edu\/ihqi\/?page_id=3686"},"modified":"2025-04-30T01:50:25","modified_gmt":"2025-04-30T05:50:25","slug":"partnering-patients-families","status":"publish","type":"page","link":"https:\/\/www.med.unc.edu\/ihqi\/resources\/partnering-patients-families\/","title":{"rendered":"Partnering with Patients &amp; Families"},"content":{"rendered":"<p>Patients and families often key insight for quality improvement efforts because they are the directly impacted by the work. For that reason, partnering with patients and families allows for care processes and services to be designed and refined based on patient and family identified needs rather than healthcare professionals\u2019 assumptions.\u00a0Quality improvement professionals can partner with patients and families in several ways, ranging from feedback on proposed materials or processes, to full participation on an improvement project team.<\/p>\n<h2>Key Steps<\/h2>\n<ul>\n<li>Identify direct and indirect touch points with patients and families in your change process.<\/li>\n<li>Determine the level of partnership needed to fully incorporate the voice of the patient and families in the improvement work. Remember that it is ideal for patients and families to be an active member in co-designing improvements, not just completing surveys or reacting to educational materials.<\/li>\n<li>Recruit patients and families that represent the patient population that your clinic or organization is serving. Be mindful of barriers that may interfere with their ability to participate (i.e. time of date, transportation, communication\/language barriers, etc.).<\/li>\n<li>Ensure that patient and family partnership is an ongoing goal throughout each stage of the project. It is important to stay curious about your patients and their experiences.<\/li>\n<\/ul>\n<h2>Resources to Get Started<\/h2>\n<table style=\"border-collapse: collapse;width: 97.564%;height: 118px\">\n<tbody>\n<tr style=\"height: 98px\">\n<td style=\"width: 7.60678%;text-align: center;height: 98px\"><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-8060\" src=\"https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Read.png\" alt=\"\" width=\"137\" height=\"137\" \/><\/strong><strong>Read<\/strong><\/td>\n<td style=\"width: 93.2057%;height: 98px\">\n<ul>\n<li><a href=\"https:\/\/www.ipfcc.org\/\" target=\"_blank\" rel=\"noopener\">Institute for Patient- and Family-Centered Care (IPFCC)<\/a> website &#8211; The IPFCC provide leadership to advance the understanding and practice of patient- and family-centered care.\u00a0<\/li>\n<li><a href=\"https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2025\/04\/Patients_and_Families_Template.pdf\" target=\"_blank\" rel=\"noopener\">Patient and Families presentation<\/a> \u2013 This is a PowerPoint that we use for our <a href=\"https:\/\/www.med.unc.edu\/ihqi\/training\/physician-engagement-in-quality-safety\/\" target=\"_blank\" rel=\"noopener\">Physician Engagement in Quality &amp; Safety (PEQS)<\/a> Program.\u00a0<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n<tr style=\"height: 23px\">\n<td style=\"width: 7.60678%;height: 10px;text-align: center\"><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-8065\" src=\"https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-300x300.png\" alt=\"\" width=\"300\" height=\"300\" srcset=\"https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-300x300.png 300w, https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-1024x1024.png 1024w, https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-150x150.png 150w, https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-768x768.png 768w, https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-1536x1536.png 1536w, https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-2048x2048.png 2048w, https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Use-2-600x600.png 600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/>Use<\/strong><\/td>\n<td style=\"width: 93.2057%;height: 10px\">\n<ul>\n<li><a style=\"background-color: #ffffff\" href=\"https:\/\/www.ahrq.gov\/professionals\/systems\/hospital\/engagingfamilies\/guide.html\">Guide to Patient and Family Engagement in Hospital Quality and Safety<\/a> \u2013\u00a0 The Agency for Healthcare Research and Quality (AHQR) developed the Guide to Patient and Family Engagement in Hospital Quality and Safety, a tested, evidence-based resource to help hospitals work as partners with patients and families to improve quality and safety.<\/li>\n<li>\n<p><a href=\"\/Users\/u297395\/Downloads\/iho_bp_patient_and_family_advisor_recruitment_guide_0.pdf\" target=\"_blank\" rel=\"noopener\">Patient and Family Advisor Recruitment Guide and Onboarding Toolkit<\/a> \u2013 This guide and toolkit, created by Johns Hopkins Medicine in collaboration with the American Medical Association\u2019s \u201cImproving Health Outcomes: Blood Pressure\u201d (IHO: BP) initiative, are intended to help facilitate the recruitment and orientation process for engaging patients and families as advisors in the planning, delivery and evaluation of care in your practice.<\/p>\n<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n<tr style=\"height: 33px\">\n<td style=\"width: 7.60678%;height: 10px;text-align: center\"><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-8062\" src=\"https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Watch-2.png\" alt=\"\" width=\"173\" height=\"173\" srcset=\"https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Watch-2.png 173w, https:\/\/www.med.unc.edu\/ihqi\/wp-content\/uploads\/sites\/463\/2022\/01\/Icon-Watch-2-150x150.png 150w\" sizes=\"auto, (max-width: 173px) 100vw, 173px\" \/>Watch<\/strong><\/td>\n<td style=\"width: 93.2057%;height: 10px\">\n<p>Below are videos about the patient perspective for their respective projects:<\/p>\n<ul>\n<li><a href=\"https:\/\/vimeo.com\/106443775\">Clinician as Patient Perspective <\/a>(Rana Awdish, 2014) (Video &#8211; 21:03)<\/li>\n<li><a href=\"https:\/\/www.med.unc.edu\/ihqi\/eventstable\/partnership-in-quality-care\/\">Patient Perspective on Improving Communication<\/a> (Patience Leno, 2018) (Video &#8211; 38:13)<\/li>\n<\/ul>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>&nbsp;<\/p>\n<h2>Related QI Concepts<\/h2>\n<ul>\n<li><a href=\"https:\/\/www.med.unc.edu\/ihqi\/resources\/institutional-review-board\/\">Institutional Review Board (IRB)<\/a> \u2013 Although IRB are not usually required for QI projects, it still is helpful to complete the application process to ensure that patients and families are not harmed when they partner with the healthcare team.<\/li>\n<li><a href=\"https:\/\/www.med.unc.edu\/ihqi\/resources\/process-mapping\/\">Process Mapping<\/a> \u2013 A process map can be a helpful tool to see the major touch points with patients and families.<\/li>\n<li><a href=\"https:\/\/www.med.unc.edu\/ihqi\/resources\/root-cause-analysis\/\">Root Cause Analysis (RCA)<\/a> \u2013 Patients and families can play a crucial in helping identify potential gaps that may exist in your process.<\/li>\n<li><a href=\"https:\/\/www.med.unc.edu\/ihqi\/resources\/stakeholder-analysis\/\">Stakeholder Analysis and Engagement<\/a> \u2013 Patient and families are key stakeholders and should be included your stakeholder analysis and engagement process.<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Patients and families often key insight for quality improvement efforts because they are the directly impacted by the work. For that reason, partnering with patients and families allows for care processes and services to be designed and refined based on patient and family identified needs rather than healthcare professionals\u2019 assumptions.\u00a0Quality improvement professionals can partner with &hellip; <a href=\"https:\/\/www.med.unc.edu\/ihqi\/resources\/partnering-patients-families\/\" aria-label=\"Read more about Partnering with Patients &amp; Families\">Read more<\/a><\/p>\n","protected":false},"author":80925,"featured_media":0,"parent":210,"menu_order":83,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-3686","page","type-page","status-publish","hentry","odd"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Partnering with Patients &amp; Families - Institute for Healthcare Quality Improvement<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.med.unc.edu\/ihqi\/resources\/partnering-patients-families\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Partnering with Patients &amp; Families - Institute for Healthcare Quality Improvement\" \/>\n<meta property=\"og:description\" content=\"Patients and families often key insight for quality improvement efforts because they are the directly impacted by the work. 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